The NPNT portfolio presents MIKA.help as an operating information and navigation service for patients and families. The project has worked in oncology since 2016 and is now expanding clinical-study search to other conditions in stages. Its public site offers ten disease areas, a quick search for Russia, a detailed questionnaire, post-diagnosis materials and compulsory-insurance and high-technology-care routes for oncology patients. The service compares information entered by a user with open registries, explains a possible match and preserves the primary-source link, recruitment status and available official contacts. The open questionnaire does not require medical-document uploads; an unknown answer can be skipped. The practical aim is to reduce the information gap between a complex registry record and the patient's next understandable step. A study returned by search remains an option to verify, not confirmation of participation. The service does not diagnose, prescribe treatment or determine eligibility. Actual recruitment, medical assessment and possible inclusion are confirmed by a clinician and the study site. Broader coverage and intelligent assistants remain development directions, not demonstrated clinical outcomes.
Project review
MIKA.help: ten search areas with study-site confirmation
The NPNT portfolio presents MIKA.help as an operating information and navigation service for patients and families. The project has worked in oncology since 2016 and is now expanding clinical-study search to other conditions in stages. Its public site offers ten disease areas, a quick search for Russia, a detailed questionnaire, post-diagnosis materials and compulsory-insurance and high-technology-care routes for oncology patients. The service compares information entered by a user with open registries, explains a possible match and preserves the primary-source link, recruitment status and available official contacts. The open questionnaire does not require medical-document uploads; an unknown answer can be skipped. The practical aim is to reduce the information gap between a complex registry record and the patient's next understandable step. A study returned by search remains an option to verify, not confirmation of participation. The service does not diagnose, prescribe treatment or determine eligibility. Actual recruitment, medical assessment and possible inclusion are confirmed by a clinician and the study site. Broader coverage and intelligent assistants remain development directions, not demonstrated clinical outcomes.